Aims

The Cystinosis Foundation UK aims to:

Improve:
Patient outcomes, treatments and research.

Inform:
Patients, families and healthcare professionals.

Share:
Stories, experiences and answers.

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News

March 23, 2025

Student Voice Prize 2024 Our chair, Will Newman, once again had the opportunity to get involved with the annual Student [...] Read more...

Events

November 17, 2024

Watch back elements of our CNE International Conference 2024 – Better Together. Our joint International Conference with CNE, held in Manchester in July 2024, was packed full [...] Read more...

Stories

September 13, 2017

Cystinosis Comic Book Series by Artist Kevin McCalla The Cystinosis Research Network in the US has teamed up with Kevin McCalla, a young artist who [...] Read more...

Newsletters

March 24, 2025

Spring 2025 Newsletter The Spring 2025 edition of our email newsletter is available to view at the link below. CFUK [...] Read more...

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