The Cystinosis Research Network in the US has teamed up with Kevin McCalla, a young artist who has cystinosis, to create a new comic book series that aims to “create a simple explanation for treating a complicated, rare disease”.
The first installment in the series is called ‘Super Cysteamine Team’. It takes readers on a fun and educational journey through ‘Kidney Cell City’. The second installment is called ‘Crossing the Deep Dark Sea – A Cystinosis Voyage’, it uses Kevin’s incredible artwork to demonstrate what it feels like to live with cystinosis. A third installment will be released at a later date.
Kevin said “I hope to utilize the unique strengths of comics to engage the Cystinosis community – patients of all ages, doctors, caregivers, social workers, and anyone who is interested.”
We have kindly been provided with copies of both the books released so far, if you would like to read them for yourself please get in touch via our contact page with your name and address.