Morven, a teenager from Scotland, living with cystinosis, tells more about life with the condition in this feature written by Kidney Research UK. Morven and mum, Alex, share the emotional and physical toll of managing the disease, from disrupted sleep and school life to the looming need for a kidney transplant. The article highlights the critical importance of research into more effective and less burdensome treatments, and the hope that new therapies could one day allow young people like Morven to live without such punishing routines. This story is a call to action for greater awareness, funding, and compassion in the fight against cystinosis.
Link to Kidney Research UK Article
