International Cystinosis Conference 2008 – A Review

On June 27 and 28th of this year, the biennial International Cystinosis Conference was held in Dublin, Ireland. Over 200 delegates attended, including researchers, medical practitioners, representatives from the Irish government, Cystinosis sufferers, families of sufferers and many others.

The theme of the conference was “dreams to reality” – how far have we come since Cystinosis was first recognised and the first organisations began to participate in Cystinosis research, and how far have we yet to go? Several members of the Cystinosis Foundation UK attended the conference and we are pleased to present several reports from the conference:

• The International Cystinosis Conference 2008
  Matt Blackham, Website Manager, Cystinosis Foundation UK. Uncle of a Cystinosis sufferer.
  An overview of the conference.
• A Research Review
  John Terry, Secretary, Cystinosis Foundation UK. Father of a Cystinosis sufferer.
  A review by John Terry, focusing on the main medical and research news.
• Research Presentation
  R.J. Anderson, S. Cannell, P.W. Groundwater, P. Suryadevara, W. van’t Hoff
  Sunderland Pharmacy School, University of Sunderland, Sunderland, SR1 3SD, UK and Great Ormond Street Hospital, London, UK
  Research update of the project funded by the Cystinosis Foundation UK at Sunderland University.
• Conference Photo Gallery
  Matt Blackham, Website Manager, Cystinosis Foundation UK. Uncle of a Cystinosis sufferer.
  A selection of photos from the conference.
• Frequently asked questions
  Matt Blackham, Website Manager, Cystinosis Foundation UK. Uncle of a Cystinosis sufferer.
  Frequently asked questions, such as “What Is the International Conference?”

The 2008 conference was organised by the Cystinosis Foundation Ireland and we would like to thank them for such a well-organised event, which was beneficial to all those who attended. It was truly a memorable experience! More information can also be found at the Cystinosis Foundation Ireland website.