Alex Hutchison

Joined: February 2020

My daughter, Morven, was diagnosed with nephropathic cystinosis in 2010, at 9 months old. As well as keeping busy looking after Morven and her younger sister and brother, I work full time in the data sector in Edinburgh. I am delighted to be a Trustee with the Foundation, with a focus on meeting our aims and making a real difference to those living with cystinosis and their families.

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A First for CFUK – Cystinosis Symposium 2020 Report On Saturday 10th Oct 2020 Cystinosis Foundation UK ran their first online Cystinosis Symposium, [...] Read more...
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