For a brighter future...
Joined: February 2020
My daughter, Morven, was diagnosed with nephropathic cystinosis in 2010, at 9 months old. As well as keeping busy looking after Morven and her younger sister and brother, I work full time in the data sector in Edinburgh. I am delighted to be a Trustee with the Foundation, with a focus on meeting our aims and making a real difference to those living with cystinosis and their families.
