SUPPORTING INDIVIDUALS, FAMILIES AND RESEARCHERS
IN THE CYSTINOSIS COMMUNITY

David Benford

Joined: January 2009

My daughter has cystinosis and is a patient of the Queen Elizabeth hospital in Birmingham. I am a company director and work in technology. I enjoy my work with the Foundation and my primary role is to look after publicity.

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CNE International Conference 2024 – We did it! Cystinosis Network Europe and Cystinosis Foundation UK were delighted to host the 2024 [...] Read more...
Watch back elements of our CNE International Conference 2024 – Better Together. Our joint International Conference with CNE, held in Manchester in July 2024, was packed full [...] Read more...
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Summer 2024 Newsletter The Summer 2024 edition of our email newsletter is available to view at the link below. CFUK [...] Read more...
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