SUPPORTING INDIVIDUALS, FAMILIES AND RESEARCHERS
IN THE CYSTINOSIS COMMUNITY

Karthikeyan Ekambaram

Joined: February 2020

I am Researcher in a Midlands based University. My son was diagnosed with cystinosis in 2018. I found that the foundation has been doing a fantastic work in supporting those who live with cystinosis and their families. I joined CFUK as a trustee in 2020 and I am delighted to contribute to this wonderful organisation.

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