Tom Kenning

Joined: February 2014

I have nephropathic cystinosis and am a patient of the Queen Elizabeth hospital in Birmingham, where I had a kidney transplant in 2008, The main focus of my role is that of the day to day running and long term management of the charity’s website. In 2014 I graduated from Staffordshire University with a degree in web design, so looking after the website is a perfect fit for me.

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Cystadrops Now Available for Patients in England Following advice from the Clinical Priorities Advisory Group (CPAG), NHS England has agreed to [...] Read more...
‘Cystinosis Connect’ Virtual Meet-up – 25th April 2021 Please join us for our next online meet-up. Your chance to virtually meet other patients and [...] Read more...
Cystinosis Comic Book Series by Artist Kevin McCalla The Cystinosis Research Network in the US has teamed up with Kevin McCalla, a young artist who [...] Read more...
Newsletter – November 2012 Issue 21 of the Foundation newsletter has recently been finalised and is available to download [...] Read more...
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