Trustee – Tom Kenning

Joined: February 2014

I have nephropathic cystinosis and am a patient of the Queen Elizabeth hospital in Birmingham, where I had a kidney transplant in 2008, I am very grateful to my Mum for donating a kidney. In 2013 I was given the chance to become a trustee, a position I was very happy to accept given that I am keen to help in any way I can. The main focus of my role is that of the day to day running and long term management of the charity’s website. I recently graduated from Staffordshire University with a degree in web design, so looking after the website is a perfect fit for me.

Comments are closed.

New Cystinosis Study – CTNS Nonsense Mutation Screen The McGill University in Canada is looking for participants in Europe and North America for a [...] Read more...
Cystinosis Education Day, 19th September 2017 A ‘Cystinosis Patient and Clinician Education Day’ is being held on Tuesday 19th [...] Read more...
Derby Moor Student an Inspiration to Us All Derby Moor student Eeshar Seehra was thrilled to achieve 3 A Levels in Maths, Physics and [...] Read more...
Newsletter – November 2012 Issue 21 of the Foundation newsletter has recently been finalised and is available to download [...] Read more...
All website content copyright Cystinosis Foundation UK (Charity No.1074885) 1997-2013, except where explicitly stated.
Data Protection Act Registration Number: Z9880997. Please refer to our terms and conditions and our privacy policy.
site:bonnyday