SUPPORTING INDIVIDUALS, FAMILIES AND RESEARCHERS
IN THE CYSTINOSIS COMMUNITY

Secretary – Tom Kenning

Joined: February 2014

I have nephropathic cystinosis and am a patient of the Queen Elizabeth hospital in Birmingham, where I had a kidney transplant in 2008, The main focus of my role is that of the day to day running and long term management of the charity’s website. In 2014 I graduated from Staffordshire University with a degree in web design, so looking after the website is a perfect fit for me.

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