Secretary – Tom Kenning

Joined: February 2014

I have nephropathic cystinosis and am a patient of the Queen Elizabeth hospital in Birmingham, where I had a kidney transplant in 2008, The main focus of my role is that of the day to day running and long term management of the charity’s website. In 2014 I graduated from Staffordshire University with a degree in web design, so looking after the website is a perfect fit for me.