Shawn Reuter is an ordinary, happy, young boy, who lives with his mum, dad, brother and two sisters in Mapleton, MN, USA. However, Shawn and his brother, David, both have Cystinosis. This new book, written… "A Day In The Life Of Shawn Reuter" Has Been Published.
In 2001 Vicky and Roy Forsyth’s 7-month-old daughter suddenly fell ill as they were moving house. What was initially thought to be a bug, persisted and was eventually diagnosed as Cystinosis, turning their world upside… Living With Cystinosis – Our Story So Far
Last weekend in Mintlaw (North East Scotland) a football charity match and disco helped raise money for the Cystinosis Foundation UK. At the time of writing the total stands at over £2,500, with a final… Football Fun Day Raises Over £2,500
The Cystinosis Foundation UK has launched its very own wristband. The funky blue band symbolises one of the Foundation’s key aims – to help solve Cystinosis. Purchasing and wearing a wrist band helps show your… Solve Cystinosis Wristbands