The grandparents of 5-year-old Cystinosis sufferer, Lena Forsyth, raised £700 for the Cystinosis Foundation UK at a dance night in Mintlaw, Aberdeenshire. The dance was held on Saturday, 20th May at the Mintlaw Public Hall… £700 Raised At Dance Night
The Cystinosis Foundation in the USA has for the last few years run a support forum for those connected and affected by Cystinosis. The forum is free to participate in and only requires that you… Cystinosis Support Forum (USA)
It is well known that Cystinosis is a rare condition, and with only 30 diagnosed individuals across the whole of Australia and New Zealand, it can be even harder to cope with in these vast… News From Australia