As of October 2006 we have now raised £82,926.27 towards our £100,000 research project appeal target, with £10,000 being raised over the course of this year. This figure does not yet include some monies from… Nearly £83,000 Raised!
The NapervilleSun news website reports on the story of Brett and Brittney LeBeau, whose two children have both been diagnosed with Cystinosis. To read about their story, see the Naperville website.
On October 2nd, Vicky and Roy Forsyth, of Mintlaw Aberdeenshire, met up with Professor Don Cairns and his team at the Robert Gordon University in Aberdeen to see first hand the research they have been… Professor Cairns Updates Us On His Research
On September 26th, Windowstyle UK raised £500 during their annual golfing challenge for the Cystinosis Family Support Network (CFSN). The golfers decided to support the CFSN after being impressed by the fund raising efforts of… Windowstyle UK’s annual golf challenge raises £500 for Cystinosis Family Support Network