When researching any disorder that is genetic in origin, finding a cure can be greatly enhanced by being able to quickly identify the genes causing the condition. The problem is identifying which of the 25,000…
In August, Ashley Kazian was crowned this year’s Miss America. And whilst this is a fantastic achievement for Ashley, it is also a major event for the Cystinosis Foundation in the USA, as she is…
The Jones Cup golf tournament, Orange County, California will this year be supporting the Cystinosis Research Foundation (USA) in honour of local businessman Marion Halfacre, who died earlier this year of heart complications. “I am…