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Fourth Cystinosis Research Network Family Conference

The Fourth Cystinosis Research Network Family Conference was held July 16-18, 2009 at the Marriott Evergreen Conference Resort in Stone Mountain, Georgia. This year’s theme was “Above and Beyond” and there is no doubt that… 

Peterhead Harbour Open Day Success

Saturday 8th August saw Jimmy and Elizabeth Forsyth again attending the annual Peterhead Harbour Open Day festival and hosting a stall to raise money for the Cystinosis Foundation UK. The Forsyths, whose granddaughter Lena has…