April 4th 2010 – 65 Mile Walk
On April 4th 2010, a group of walkers, led by Colin Buist will undertake a 65 mile walk along Speyside in North East Scotland. The group have been inspired to undertake the walk in aid…
Support Jo Grant’s Run
Jo Grant will be running in the Kingston Breakfast Run on 11th April 2010 to raise money for the Cystinosis Foundation UK. Jo states, "I only recently became aware of this charity as my friend’s…
$75,000 raised in 24 hour ski marathon
An absolutely incredible $75,000 was raised at the ski resort of Schweitzer Mountain, Sandpoint, Idaho, USA in honour of cystinotic and Sandpoint resident, 3-year-old Henry Sturgis. The resort stayed open through the night last Friday,…