It takes your breathe away…well it certainly did in the case of Darren, the partner of Jessica Kemp whose daughters have Cystinosis. In February, Jessica shaved off all her golden locks after she was sponsored… It Takes Your Breathe Away
A "guess the squares" raffle, run by Elizabeth Forsyth (grandmother of Lena Forsyth who has Cystinosis) was given a boost, when Scotland’s First Minister, Alex Salmond, re-donated a bottle of Scottish Parliament whisky. Read More…… "Cheers" From Scotland’s First Minister
April has been a big month for the Foundation and its supporters. We have had a significant number of big events happening and to quote our treasurer, Gareth Jackson, "The latest total is £227,224.27 and… Fundraising Update And A Word Of Thanks
It was in 1990 that Sue Scott took the decision to donate a kidney to her daughter, Serena, who has Cystinosis. Now, in 2011, the Scott family are celebrating the 21st anniversary of the transplant… Serena Celebrates 21st Anniversary Of Transplant
The Cystinosis Foundation UK is organising a conference on Saturday September 24th at the Manchester Conference Centre. We are still in the early stages of organising this, so more details will follow soon. For now,… BREAKING NEWS – UK CONFERENCE – MANCHESTER – SEPTEMBER 24th
On December 5th 2010, Chris and Erin Neesham ran the Singapore Half Marathon and successfully raised close to £3,000 for the Cystinosis Foundation UK. We are hugely grateful to them both for running through the… Success In Singapore