Berlin Wallies Marathon
Four friends, hence forth known as the "Berlin Wallies" have signed up to do the Berlin Marathon to raise money for the Cystinosis Foundation UK. The marathon takes place on 25th September 2011 and the…
Sky Dive & School Fundraising Events Top £3,000
A sky diving teacher and a week of school fundraising events has raised over £3,000 for the Cystinosis Foundation UK! After hearing how several members of one of her student’s families has Cystinosis, teaching assistant…
UK Conference Confirmation – September 24th
A huge number of you have registered your interest in the UK conference and there have been several requests to confirm whether the conference is taking place – the answer is simply “yes” and we…
Golfing Record Broken In Aid Of Cystinosis
Congratulations to 27-year-old Geno Bonnalie, of Lewiston, Idaho, USA, who set a new world record for playing the most holes of golf in a week and the greatest number of birdies in a week. Geno…
Cystinosis Foundation USA July 2011 Newsletter Released
The Cystinosis Foundation USA has released their July 2011 newsletter detailing their progress in funding research, support for organisations around the world and other activities. Read The Newsletter.