Twenty year-old Sarah Laing has Cystinosis. Her story and the research being undertaken at Sunderland University, not far from where Sarah lives, are told on a short ITV television broadcast. To see the full video,… Sarah Laing on ITV television
On 24th September 2011, over 100 people attended the UK Cystinosis conference at the Manchester Conference Centre– the first UK conference for several years and certainly the largest. Attendees included individuals from the Foundation itself,… UK Cystinosis Conference 2011
We’re pleased to announce Nephropathic Cystinosis Quest, a board game about Cystinosis. The game, is aimed at those 7 years old and above, but can be enjoyed by all ages. We have a limited supply… Cystinosis – The Board Game!
Congratulations, and a big thank you, to Amy Mace who managed to raise £220 from her garage sale on September 4th. Amy participated in the Capel-le Ferne garage safari. Participants were able to buy a… Garage Sale Success