Congratulations to the Cystinosis Research Foundation on yet another successful golf day fundraiser. The Cystinosis Research Foundation raised over $215,000 on the 14th November during its Fore A Cure, Natalie’s Wish Golf Tournament at the… 

Acacia Dawn Robinson was only 4 months old when, tragically, severe heart complications ended her life prematurely. As a mark of gratitude for the support the family received, Acacia’s grandparents, Michael and Julia Robinson, decided… 

Congratulations and a big thank you to the Yates family for all their work in creating TheSockDrawer auction website, raising money for the Cystinosis Foundation UK! Patrick Yates, website creator, picks up the story: "The… 

Nine-year-old Thomas Goulsbra has Cystinosis. Recently he also had the added complication of going through a lumbar puncture to relieve fluid on his brain. This has been a trying time for the family, but a…