We need your feedback! A new model of care for cystinosis has been proposed as part of the national designation application to NHS England. Your feedback is vital, the model of care needs to suit… National Designation Survey – Your Chance to Have a Say

It’s that time of year again, flu season! The NHS recommends that people with long term health conditions, including cystinosis, have a flu vacinne. Patients who have had a transplant are at increased risk of… Have You Had a Flu Vaccine?

We have recently joined a website called Giveacar, which collects old cars, scraps or auctions them, then donates the proceeds to charity. Do you own a vehicle that you want to sell or get rid… Old Car? Scrap It for Cystinosis