Marathon Runner Paul Raises Over £1,200!
Back in April, Paul Stone ran the London Marathon, raising £1,258 for us. Paul chose to fundraise for us because his cousin’s son, Elliot, has cystinosis. We don’t officially get given any charity places for…
POSTPONED: National Cystinosis Study Day at QE Hospital, Birmingham
UPDATE: Unfortunately this event has been postponed until Spring 2018. When a new date is decided we will publish a new post with full details. The QE Hospital in Birmingham are hosting a ‘National…