We recently became aware that many patients have been unable to get any supply of the unlicensed 0.55% cysteamine hydrochloride eye drops they are prescribed. We contacted Guy’s and St Thomas’ NHS Foundation Trust, who… 

We are saddened to hear that Dr. Jerry Schneider sadly passed away on 28th December 2021. Dr. Schneider devoted his entire career to cystinosis. He and his colleagues researched the condition when very little was…