Summer 2024 Newsletter
The Summer 2024 edition of our email newsletter is available to view at the link below. CFUK Newsletter – Summer 2024 This includes: – Understanding the Lived Experience of Cystinosis in the UK – Will’s… Summer 2024 Newsletter
Cystagon / Procysbi Survey
Do you have experience of cystagon (mercaptamine), procysbi (cysteamine bitartrate), or both? Take part in our questionnaire to help decision-makers understand the impact cystinosis and its treatment has on the day-to-day quality of life of… Cystagon / Procysbi Survey