The Summer 2024 edition of our email newsletter is available to view at the link below.
This includes:
- – Understanding the Lived Experience of Cystinosis in the UK
- – Will’s Visit to Sunderland University
- – Millions Mark Rare Disease Day
- – Margaret’s Women’s Institute Talk
- – Nursery Fun Run
- – Mark’s Marathon Run in Memory of Friend’s Son
- – CNE International Conference 2024
- – Meet the Trustees: Tom Kenning
- – And more!
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