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SUPPORTING INDIVIDUALS, FAMILIES AND RESEARCHERS
IN THE CYSTINOSIS COMMUNITY
RT @rarediseaseuk: Meet Ellie and her twin sister Molly. Ellie has cystinosis, a #raredisease causing problems with kidneys and eyes, later…
Fri Aug 31 11:38:55

Join Us

May 31, 2013 | Posted by AlexH

After joining the Cystinosis Foundation UK you will be sent our periodic newsletter. In addition, we will keep you informed of news and events, as and when they occur. Find out more…

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News
May 22, 2018
We’re Looking for New Trustees – Can You Help? Cystinosis Foundation UK is a charity that helps and supports people living with the rare [...] Read more...
Events
August 23, 2018
Sponsored Walk for Ava The family of Ava, who was diagnosed with cystinosis last December, have organised a sponsored [...] Read more...
Stories
September 13, 2017
Cystinosis Comic Book Series by Artist Kevin McCalla The Cystinosis Research Network in the US has teamed up with Kevin McCalla, a young artist who [...] Read more...
Newsletters
December 2, 2012
Newsletter – November 2012 Issue 21 of the Foundation newsletter has recently been finalised and is available to download [...] Read more...
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