International Conference Report 2006

Conference Sponsor
The 4th International Cystinosis Conference was held at Noodwijkerhout in the Netherlands between June 30 – July 2

The conference brought together families living with Cystinosis and the best international experts. Over the 2 days, a series of sessions and workshops took place acting as an opportunity to exchange knowledge and enable communications betweeen those with or involved with Cystinosis. Sessions included presentations of scientific papers, reports from the various Cystinosis charities and both adult and children orientated workshops.

The Cystinosis Foundation UK were represented by Jonathan Terry, founder of the Cystinosis Foundation UK, and his parents John and June Terry. John Terry, also a member of the Foundation’s committee, has kindly written a report on the event, which can be found in our learning articles section of the website.

Further information on this event can also be found at:

  • Cystinosis Foundation (USA) website.
  • Cystinosis Foundation Netherlands website.
  • Comments are closed.

    Team of Five to Take on Tough Mudder Challenge This Sunday, 5th September a team of 5 fundraisers is taking on the ‘Tough Mudder‘, [...] Read more...
    ‘Cystinosis Connect’ Virtual Meet-up – 25th September 2021 Please join us for our next online meet-up. Your chance to virtually meet other patients and [...] Read more...
    Cystinosis Comic Book Series by Artist Kevin McCalla The Cystinosis Research Network in the US has teamed up with Kevin McCalla, a young artist who [...] Read more...
    Please Subscribe to Our New Mailing List We are very excited to launch our new mailing list! By signing up for free at the link below [...] Read more...
    All website content copyright Cystinosis Foundation UK (Charity No.1074885) 1997-2013, except where explicitly stated.
    Data Protection Act Registration Number: Z9880997. Please refer to our terms and conditions and our privacy policy.