SUPPORTING INDIVIDUALS, FAMILIES AND RESEARCHERS
IN THE CYSTINOSIS COMMUNITY

International Conference Report 2006

Conference Sponsor
The 4th International Cystinosis Conference was held at Noodwijkerhout in the Netherlands between June 30 – July 2

The conference brought together families living with Cystinosis and the best international experts. Over the 2 days, a series of sessions and workshops took place acting as an opportunity to exchange knowledge and enable communications betweeen those with or involved with Cystinosis. Sessions included presentations of scientific papers, reports from the various Cystinosis charities and both adult and children orientated workshops.

The Cystinosis Foundation UK were represented by Jonathan Terry, founder of the Cystinosis Foundation UK, and his parents John and June Terry. John Terry, also a member of the Foundation’s committee, has kindly written a report on the event, which can be found in our learning articles section of the website.

Further information on this event can also be found at:

  • Cystinosis Foundation (USA) website.
  • Cystinosis Foundation Netherlands website.
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