Welcome To The New Site

After 5 years of the same website, we were feeling old and felt it was time for a face lift – welcome to the new Cystinosis Foundation UK website! We hope you feel it is fresher, easier to navigate and simply more useful. We appreciate all comments, so please contact us with any feedback.

You may notice the older news and events are not on the site – we wil be working over the coming weeks to make these available, as well as updating you with all the current news.

Wishing you all the best for 2010.

The Cystinosis Foundation Team

Comments are closed.

Wendy Walks Again for Cystinosis Last year Wendy Exelby, whose son Adam has cystinosis, raised £400 for us by doing a sponsored [...] Read more...
POSTPONED: National Cystinosis Study Day at QE Hospital, Birmingham UPDATE: Unfortunately this event has been postponed until Spring 2018. When a new date is [...] Read more...
Cystinosis Comic Book Series by Artist Kevin McCalla The Cystinosis Research Network in the US has teamed up with Kevin McCalla, a young artist who [...] Read more...
Newsletter – November 2012 Issue 21 of the Foundation newsletter has recently been finalised and is available to download [...] Read more...
All website content copyright Cystinosis Foundation UK (Charity No.1074885) 1997-2013, except where explicitly stated.
Data Protection Act Registration Number: Z9880997. Please refer to our terms and conditions and our privacy policy.
site:bonnyday