Newsletter 2009 Issue 16

Issue 16 (January 2009) of our newsletter has recently been released and all members should now have their copy. And a bumper edition it is too, with stories on research, medical notes and experiences of dealing with Cystinosis. Thank you to everyone who has contributed to its content!

If you have not received your newsletter, or would like to become a member and receive one, please contact us or you can choose to download now.

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