Newsletter 2009 Issue 17

September 23, 2009 | Posted by AlexH

Issue 17 (September 2009) of our newsletter has recently been released and includes stories covering fund raising, research, experiences of dealing with Cystinosis and a retrospective of the first 10 years of the Foundation. Thank you to everyone who has contributed to its content!

If you have not received your newsletter, or would like to become a member and receive one, please contact us or you can choose to download here:

2009, Issue 17

Comments are closed.

« One Mile One Person Success – Cycling a mile for each person with Cystinosis in the UK

Fundraising Update »

News

May 22, 2018

We’re Looking for New Trustees – Can You Help? Cystinosis Foundation UK is a charity that helps and supports people living with the rare [...] Read more...

Events

November 14, 2018

National Cystinosis Study Day at QE Hospital, Birmingham The QE Hospital in Birmingham are hosting a ‘National Cystinosis Study Day’ on Saturday, 26th [...] Read more...

Stories

September 13, 2017

Cystinosis Comic Book Series by Artist Kevin McCalla The Cystinosis Research Network in the US has teamed up with Kevin McCalla, a young artist who [...] Read more...

Newsletters

December 2, 2012

Newsletter – November 2012 Issue 21 of the Foundation newsletter has recently been finalised and is available to download [...] Read more...

All website content copyright Cystinosis Foundation UK (Charity No.1074885) 1997-2013, except where explicitly stated.
Data Protection Act Registration Number: Z9880997. Please refer to our terms and conditions and our privacy policy.

site:bonnyday