Newsletter 2009 Issue 17

September 23, 2009 | Posted by AlexH

Issue 17 (September 2009) of our newsletter has recently been released and includes stories covering fund raising, research, experiences of dealing with Cystinosis and a retrospective of the first 10 years of the Foundation. Thank you to everyone who has contributed to its content!

If you have not received your newsletter, or would like to become a member and receive one, please contact us or you can choose to download here:

2009, Issue 17

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« One Mile One Person Success – Cycling a mile for each person with Cystinosis in the UK

Fundraising Update »

News

August 11, 2017

Wendy Walks Again for Cystinosis Last year Wendy Exelby, whose son Adam has cystinosis, raised £400 for us by doing a sponsored [...] Read more...

Events

July 16, 2017

National Cystinosis Study Day at QE Hospital, Birmingham The QE Hospital in Birmingham are hosting a ‘National Cystinosis Study Day’ on [...] Read more...

Stories

September 10, 2015

Derby Moor Student an Inspiration to Us All Derby Moor student Eeshar Seehra was thrilled to achieve 3 A Levels in Maths, Physics and [...] Read more...

Newsletters

December 2, 2012

Newsletter – November 2012 Issue 21 of the Foundation newsletter has recently been finalised and is available to download [...] Read more...

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