Spring 2022 Newsletter

We published our first email newsletter in April 2022, this was sent to subscribers of our free mailing list and is also available to view at the link below.

CFUK Newsletter – Spring 2022

This edition of our newsletter includes:

  • – CFUK and Cystinosis Ireland Jointly Funding Two New Research Projects
  • – Cystadrops Now Available for Patients in England
  • – Fifth Patient Enrolled in Gene Therapy Trial
  • – Run for Cystinosis
  • – Team of Five Take on Tough Mudder Challenge
  • – Tom Wood Runs Manchester Marathon
  • – Latest News and Updates Webinar
  • – Cystinosis Connect
  • – 3rd CNE International Cystinosis Conference
  • – Call to action for CF10 – Be a PAL!
  • – And more!

To receive future editions of our email newsletter please subscribe to our mailing list.

Comments are closed.

Contact: For Families With Disabled Children We’ve recently discovered this organisation that offers a wealth of information, advice [...] Read more...
Latest News and Updates Webinar – 27th November 2021 Please join us on Saturday, 27th November at 2pm for our ‘Latest News and Updates’ [...] Read more...
Cystinosis Comic Book Series by Artist Kevin McCalla The Cystinosis Research Network in the US has teamed up with Kevin McCalla, a young artist who [...] Read more...
Winter 2022 Newsletter The Winter 2022 edition of our email newsletter is available to view at the link below. CFUK [...] Read more...
All website content copyright Cystinosis Foundation UK (Charity No.1074885) 1997-2013, except where explicitly stated.
Data Protection Act Registration Number: Z9880997. Please refer to our terms and conditions and our privacy policy.