SUPPORTING INDIVIDUALS, FAMILIES AND RESEARCHERS
IN THE CYSTINOSIS COMMUNITY

Spring 2022 Newsletter

We published our first email newsletter in April 2022, this was sent to subscribers of our free mailing list and is also available to view at the link below.

CFUK Newsletter – Spring 2022

This edition of our newsletter includes:

  • – CFUK and Cystinosis Ireland Jointly Funding Two New Research Projects
  • – Cystadrops Now Available for Patients in England
  • – Fifth Patient Enrolled in Gene Therapy Trial
  • – Run for Cystinosis
  • – Team of Five Take on Tough Mudder Challenge
  • – Tom Wood Runs Manchester Marathon
  • – Latest News and Updates Webinar
  • – Cystinosis Connect
  • – 3rd CNE International Cystinosis Conference
  • – Call to action for CF10 – Be a PAL!
  • – And more!

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