We published our first email newsletter in April 2022, this was sent to subscribers of our free mailing list and is also available to view at the link below.
CFUK Newsletter – Spring 2022
This edition of our newsletter includes:
- – CFUK and Cystinosis Ireland Jointly Funding Two New Research Projects
- – Cystadrops Now Available for Patients in England
- – Fifth Patient Enrolled in Gene Therapy Trial
- – Run for Cystinosis
- – Team of Five Take on Tough Mudder Challenge
- – Tom Wood Runs Manchester Marathon
- – Latest News and Updates Webinar
- – Cystinosis Connect
- – 3rd CNE International Cystinosis Conference
- – Call to action for CF10 – Be a PAL!
- – And more!
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