SUPPORTING INDIVIDUALS, FAMILIES AND RESEARCHERS
IN THE CYSTINOSIS COMMUNITY

Spring 2025 Newsletter

The Spring 2025 edition of our email newsletter is available to view at the link below.

CFUK Newsletter – Spring 2025

This includes:

  • – Feedback from the International Conference
  • – Will’s visit to Recordati HQ
  • – Rare Disease Day: More Than You Can Imagine
  • – Millie Clare on Dragons Den
  • – Meeting the Clinical Nurse Specialists
  • – Meet the Trustees: Karthik Ekambaram
  • – And more!

To receive future editions of our email newsletter please subscribe to our mailing list.

Comments are closed.

Student Voice Prize 2024 Our chair, Will Newman, once again had the opportunity to get involved with the annual Student [...] Read more...
Watch back elements of our CNE International Conference 2024 – Better Together. Our joint International Conference with CNE, held in Manchester in July 2024, was packed full [...] Read more...
Cystinosis Comic Book Series by Artist Kevin McCalla The Cystinosis Research Network in the US has teamed up with Kevin McCalla, a young artist who [...] Read more...
Spring 2025 Newsletter The Spring 2025 edition of our email newsletter is available to view at the link below. CFUK [...] Read more...
All website content copyright Cystinosis Foundation UK (Charity No.1074885) 1997-2013, except where explicitly stated.
Data Protection Act Registration Number: Z9880997. Please refer to our terms and conditions and our privacy policy.
site:bonnyday