SUPPORTING INDIVIDUALS, FAMILIES AND RESEARCHERS
IN THE CYSTINOSIS COMMUNITY

Winter 2022 Newsletter

The Winter 2022 edition of our email newsletter is available to view at the link below.

CFUK Newsletter – Winter 2022

This includes:

  • – Opportunity for UK Cystinosis Families to Become Involved in a New Research Project
  • – Gene Therapy News
  • – History of Cystinosis
  • – Contact: For Families With Disabled Children
  • – Joint-funded Research
  • – Cystagon Supply Issues
  • – Big Birthday Barn Dance Fundraiser
  • – International Conference 2024 – Feedback Needed
  • – Real People, Real Stories: An Inside Job. From Patient, to Biomedical Scientist
  • – Meet the Trustees: Alex Hutchison
  • – And more!

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