The Winter 2022 edition of our email newsletter is available to view at the link below.
CFUK Newsletter – Winter 2022
This includes:
- – Opportunity for UK Cystinosis Families to Become Involved in a New Research Project
- – Gene Therapy News
- – History of Cystinosis
- – Contact: For Families With Disabled Children
- – Joint-funded Research
- – Cystagon Supply Issues
- – Big Birthday Barn Dance Fundraiser
- – International Conference 2024 – Feedback Needed
- – Real People, Real Stories: An Inside Job. From Patient, to Biomedical Scientist
- – Meet the Trustees: Alex Hutchison
- – And more!
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