Making Cysteamine Tasteless
Dr Don Cairns, Robert Gordon University I have been working on cystinosis for about five or six years, initially at the University of Sunderland and now at The Robert Gordon University (RGU) in Aberdeen, where…
Runners Raise £1, 262 in Aberdeen 10K Run
On May 22nd 2005, six staff from Pelikan Hardcopy (based in Turriff, between Aberdeen and Inverness) took the challenge to run the Aberdeen Baker Hughes 10K race, in order to raise money for the Cystinosis…
Longside Gala Stall Raises £91
May 22nd saw Vicky and Roy Forsyth, along with their daughter Lena, Auntie Philippa and Uncle Matt, hosting a Cystinosis Foundation UK stall at the Longside Gala, near Aberdeen. The couple had organised various activities,…
£750 Raised From Coffee Morning
On 23rd April 2005, Elizabeth Forsyth of Mintlaw (north of Aberdeen) organised a coffee morning raising £787.53 for the Cystinosis Foundation UK. Mrs Forysth’s granddaughter, Lena Forsyth, has been diagnosed with Cystinosis and Mrs Forysth…
San Diego Researcher Requesting Volunteers For Medical Research
Dr Dohil, who is a Pediatric Gastroenterologist at UC San Diego, is presently conducting a research study with the aim to determine where in the intestine cysteamine (CystagonTM) is absorbed. This information may help create…