A wonderful night was had by all on Saturday 4th February at the Gosling Sports Centre in Hertfordshire. Organised by Tracy Lambe, cousin to Sinêad and Ciara Maguire who both have Cystinosis, it was a… £7,000 Raised at Fundraiser Night
Huntington’s Disease is a neurological condition that can bring on intellectual deterioration, leading to dementia. It is accompanied by symptons of depression and involuntary abnormal body movements. It is a rare condition that usually occurs… Cysteamine might be a treatment for Huntington’s Disease
The Cystinosis Foundation UK were pleased to be presented with a cheque for £200 from the Mintlaw Indoor Bowling Club earlier this week. The club raised £600 through a in-house event for members, which was… Mintlaw Indoor Bowling Club Present £200 Cheque
The latest newsletter was recently sent out to the Foundation’s members and can be downloaded here.
The Cystinosis Foundation UK has a board of trustees who meet on a regular basis to discuss recent events, future strategy and how best to utilise our resources to their greatest benefit. The board all… Meet The Team