Juliet Scully and her father, Bob Bailey, celebrated their 60th and 85th birthdays on Saturday 22nd July. Juliet knows the grandparents of Cystinosis sufferer, Lena Forsyth, and having 5 healthy grandchildren of her own, wanted… 

Great news! We have now broken through the £80,000 mark in our attempt to raise £100,000 to fund Cystinosis research projects! Numerous fundraising events have taken place helping us to this total and we are…