Earlier this month, Paul Clifford set off on his challenge to cycle over 800Km from the Southern tip of France, across the Pyrenees, along northern Spain, over several more mountain ranges to Santiago, following an… Paul Clifford completes his 800Km cycle for Cystinosis
In March 2006, at 21 months old, Jenna and Patrick Partington were diagnosed with Cystinosis. Their doctors had initially never heard of Cystinosis and believed that it was only a text book disease. Jenna and… Jenna & Patrick’s Foundation of Hope
Sara Laing, from Moorside, Sunderland, is 15 years old and was diagnosed with Cystinosis at 18 months. The Cystinosis damaged her kidneys leading to their failure 7 and a half years ago, and since then… A New Life For Sara
Linked are two articles from American newspapers that highlight the story of families who have recently had children diagnosed with Cystinosis. The first linked article covers the story of six-year-old Victor Gardner and includes a… News in America
Linked are two articles from American newspapers that highlight the story of families who have recently had children diagnosed with Cystinosis. The first linked article covers the story of six-year-old Victor Gardner and includes a… News in America