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Jenna & Patrick’s Foundation of Hope

In March 2006, at 21 months old, Jenna and Patrick Partington were diagnosed with Cystinosis. Their doctors had initially never heard of Cystinosis and believed that it was only a text book disease. Jenna and… 

A New Life For Sara

Sara Laing, from Moorside, Sunderland, is 15 years old and was diagnosed with Cystinosis at 18 months. The Cystinosis damaged her kidneys leading to their failure 7 and a half years ago, and since then… 

News in America

Linked are two articles from American newspapers that highlight the story of families who have recently had children diagnosed with Cystinosis. The first linked article covers the story of six-year-old Victor Gardner and includes a… 

News in America

Linked are two articles from American newspapers that highlight the story of families who have recently had children diagnosed with Cystinosis. The first linked article covers the story of six-year-old Victor Gardner and includes a…