On August 27th and 28th, Matt Blackham and David Hancock, both originally from Ellon, Aberdeenshire, will be aiming to cycle 200 miles in 2 days to raise awareness of Cystinosis and raise valuable funds for… Over £1,500 Raised So Far
Trevor Strauss’s 23-month-old daughter, Gabby, has Cystinosis and he is the founder of Canadian based charity CARE – Cystinosis Awareness Research. Trevor was recently interviewed for Canadian Rock 107’s Morning Show. You can view the… TV Interview Of Family Dealing With Cystinosis
The Cystinosis Foundation UK has a board of trustees who meet on a regular basis to discuss recent events, future strategy and how best to utilise our resources to their greatest benefit. The board all… Meet The Team