Olly Murs At The River Bar – 7th Feb 2010
We are very pleased to announce a concert in aid of the Cystinosis Foundation UK, featuring X-Factor star Olly Murs, in the luscious surroundings of the River Bar in Greenwich on 7th February 2010. This…
Welcome To The New Site
After 5 years of the same website, we were feeling old and felt it was time for a face lift – welcome to the new Cystinosis Foundation UK website! We hope you feel it is…
Good Luck Dubai Runners
Everyone at the Cystinosis Foundation UK would like to wish Stephen Crowder and Scott Kerins the best of luck as they undertake the Dubai Marathon on 22nd January 2010. The pair are preparing for the…
65th Party In Aid Of Foundation
Congratulations and a big thank you to Leslie Smith, who celebrated his 65th birthday in November 2008 and raised £400 for the Cystinosis Foundation UK at his party. Friends who attended the party at the…
Nevaeh’s Story
Nevaeh Lynn Stanford was diagnosed with Cystinosis at 17 months. Now a little over two, she is on medication that has begun improving the quality of her life. Her strict daily routine is still hard…