The Cystinosis Research Foundation has made available the publication of "Long-Term Treatment of Cystinosis in Children with Twice-Daily Cysteamine" by a group of leading researchers, including Dr Ranjan Dohil. This publication details the results of…
To all those going to the conference, please note the shuttle bus times have changed – please contact Quick Line to confirm the time of your shuttle bus. If you are unfamiliar with Venice Aiport,…
Issue 18 (April 2010) of our newsletter has recently been published and if you are a member of the Foundation you should receive your copy soon, or you can download direct from the site (requires…
Next month keen runner Lee Vallett will be running the London Marathon for the third time, and again fundraising on behalf of the Cystinosis Foundation UK. Lee has chosen to support the Foundation as a…
A music gig, featuring X-Factor star Olly Mars at the River Bar in London, helped raise £400 for the Cystinosis Foundation UK. We’d like to thank all those at the River Bar for their support…
The Cystinosis Foundation UK is incredibly proud to announce that we have now raised over £190,000, as of March 2010, and are now less than £10,000 from our target. This money is being used to…