Diamond Wedding Anniversary Donation
The Cystinosis Foundation UK would like to thank Dorothy and Gordon Wood for their kind donation of £150 after asking family and friends to give money to the Foundation instead of giving them gifts. Dorothy…
Sock Puppets Raise £250
We are grateful for the efforts of Corinne & David Yates, who have been busy creating sock puppets in order to raise money for the Cystinosis Foundation UK. However, the pair have not only given…
RGU Research – Alternative Cysteamine Delivery Systems
We are grateful to the Cystinosis Research Team at the Robert Gordon University Aberdeen, and in particular researcher, Barbara Buchan, for allowing us to publish their research poster presentation. The poster was presented at the…
IMPORTANT – CONFERENCE SHUTTLE BUS TIME CHANGES
To all those going to the conference, please note the shuttle bus times have changed – please contact Quick Line to confirm the time of your shuttle bus. If you are unfamiliar with Venice Aiport,…
Raptor Slow Release Treatment At Trial Stage
US Pharmaceutical firm, Raptor, have successfully raised funds via a share issue to fund the next stage of trials for their new Cystinosis treatment. DR Cysteamine is the first drug from Raptor, and it is…
Foundation Assists Robert Gordon University Attend Conference
We are pleased to publish a conference report by Barbara Buchan of the Robert Gordon University in Aberdeen. Barbara, who is receiving funding by the Cystinosis Foundation UK, recently attended the Controlled Release Society’s 37th…
Shall We Meet Up In 2011?
There have been various discussions and notes of interest for a Cystinosis UK gathering in 2011. The Cystinosis Foundation UK is keen to facilitate and help organise a meeting for those of us affected by…
Peterhead Harbour Open Day Success
A big thank you goes to Elizabeth Forsyth, grandmother to Cystinotic Lena Forsyth, who had yet another fantastic fundraising day at the Peterhead Harbour Open Day on the 14th of August. Elizabeth ran the stall…
Visit To Robert Gordon University, Aberdeen
On June 9th Chairman, Roy Forsyth, his wife Vicky and Secretary, John Terry, visited the School of Pharmacy and Life Sciences at the Robert Gordon University (RGU). Our host was Professor Don Cairns who moved…
CLIMB’s Latest Newsletter
The August Newsletter Is Now Available The latest CLIMB newsletter has been released: Read the August Newsletter. Who are CLIMB? CLIMB (Children Living with Inherited Metabolic Disorders) are a national organisation working on behalf of…