The Cystinosis Foundation UK is incredibly proud to announce that we have now raised over £190,000, as of March 2010, and are now less than £10,000 from our target. This money is being used to… Fundraising Update – £190,793!
On April 4th 2010, a group of walkers, led by Colin Buist will undertake a 65 mile walk along Speyside in North East Scotland. The group have been inspired to undertake the walk in aid… April 4th 2010 – 65 Mile Walk
Jo Grant will be running in the Kingston Breakfast Run on 11th April 2010 to raise money for the Cystinosis Foundation UK. Jo states, "I only recently became aware of this charity as my friend’s… Support Jo Grant’s Run
An absolutely incredible $75,000 was raised at the ski resort of Schweitzer Mountain, Sandpoint, Idaho, USA in honour of cystinotic and Sandpoint resident, 3-year-old Henry Sturgis. The resort stayed open through the night last Friday,… $75,000 raised in 24 hour ski marathon
We are very pleased to announce a concert in aid of the Cystinosis Foundation UK, featuring X-Factor star Olly Murs, in the luscious surroundings of the River Bar in Greenwich on 7th February 2010. This… Olly Murs At The River Bar – 7th Feb 2010
After 5 years of the same website, we were feeling old and felt it was time for a face lift – welcome to the new Cystinosis Foundation UK website! We hope you feel it is… Welcome To The New Site
Everyone at the Cystinosis Foundation UK would like to wish Stephen Crowder and Scott Kerins the best of luck as they undertake the Dubai Marathon on 22nd January 2010. The pair are preparing for the… Good Luck Dubai Runners
Congratulations and a big thank you to Leslie Smith, who celebrated his 65th birthday in November 2008 and raised £400 for the Cystinosis Foundation UK at his party. Friends who attended the party at the… 65th Party In Aid Of Foundation
Nevaeh Lynn Stanford was diagnosed with Cystinosis at 17 months. Now a little over two, she is on medication that has begun improving the quality of her life. Her strict daily routine is still hard… Nevaeh’s Story