The Cystinosis Research Foundation have announced changes to their Scientific Review Board –

The Cystinosis Foundation UK are pleased to announce the sale of a series of luxury hand made cards, available for purchase on on-line. The cards have been prepared by hand by Nikki Woods and are… Hand Made Cards For Sale

A big well done and thank you are due to the children and teachers of Broomgrove Infants in Wivenhoe, Essex who raised over £100 for the Cystinosis Foundation UK during May this year. The children… Sponge Bob Money Saver

Our thanks go to Colin Buist for allowing us to publish his account of his epic Speyside Way adventure with friends and family in April of this year. And thank you to all those involved… Spey Side Walk Story

The Cystinosis Research Network (USA) are pleased to announce they have awarded funding for a three year Cystinosis research fellowship. Read More…

The May Newsletter Is Now Available The latest CLIMB newsletter has been released: Read the May Newsletter. Who are CLIMB? CLIMB (Children Living with Inherited Metabolic Disorders) are a national organisation working on behalf of… CLIMB Newsletter Published

Awareness of Cystinosis and the Cystinosis Foundation UK is receiving a boost after Tony and Janet Sladdin agreed to sponsor Mintlaw Primary School’s football team strip. Tony and Janet are grandparents of Lena Forsyth, who… School Football Team Sponsorship

A huge “well done” is certainly due for Lee Vallett, who not only successfully completed the London Marathon last month, but also beat his target time and raised nearly £1,000 for the Cystinosis Foundation UK… Lee’s London Success!