If you or your child suffers from Cystinosis then the CCIR are calling for you to register. The CCIR is the ONLY International Cystinosis Registry in the world, and they need as many Cystinotics to… Have you registered with the Cure Cystinosis International Registry (CCIR)?
The Cystinosis Research Foundation, USA, has released a series of videos from recent events they have undertaken, as well as their 2011 promotional video. This video gives a brief background on Cystinosis and details some… Cystinosis Research Foundation Promotional Video 2011
The Cystinosis Foundation USA has released their most recent newsletter detailing their progress in funding research, support for organisations around the world and other activities. Read The Newsletter.
The total amount raised from the Sheffield Walk, that took place in April this year in aid of the Cystinosis Foundation UK, has been announced. A whopping £8,576 has been raised by the 60 people… Sheffield Walk – Final Total Announced
Team Kempy managed to get “spotted” by Radio 5 Live who were reporting from Greenwich, the start location for the London Marathon. They swiftly got rounded up and gave a brief description on Radio 5… “Team Kempy” on Radio 5 Live plug the Cystinosis Foundation UK
The Cystinosis Research Foundation in the USA has successfully raised $1.3 million in a single night! Their annual fundraiser dinner, held at the Balboa Bay Club in Newport Beach, California, had over 300 attendees, including… USA Charity Night raises $1.3m!!