We’re pleased to announce Nephropathic Cystinosis Quest, a board game about Cystinosis. The game, is aimed at those 7 years old and above, but can be enjoyed by all ages. We have a limited supply… Cystinosis – The Board Game!

Congratulations, and a big thank you, to Amy Mace who managed to raise £220 from her garage sale on September 4th. Amy participated in the Capel-le Ferne garage safari. Participants were able to buy a… Garage Sale Success

A huge congratulations to the Berlin Wallies who completed the Berlin Marathon on Sunday 25th September and raised a whopping £7,057.40 for the Cystinosis Foundation UK in the process. The team, consisting of Neil Hutchison,… Berlin Wallies Wonder

Our on-line referral eStore has now been rebranded as Spend And Raise. Before you make any purchase on-line, check out our site at www.spendandraise.com/cystinosis and if the retailer is listed there, click their link and… Spend And Raise

Chairman, Roy Forsyth, explains how you can help with Cystinosis Research if you are attending the Cystinosis UK Conference in Manchester on 24th September 2011… Hello all, We are delighted so many of you will… Help Cystinosis Research At The UK Conference

The Robert Gordon University has recently been awarded a grant of over £100,000 to continue its research into eye gels. The funding is provided by leading children’s medical research charity, Sparks, and will allow the… The Robert Gordon University Receive £100,000 Grant

Only 9 months after I reported that our research funds appeal had raised over £200,000, it is incredibly pleasing for me to be able to report that we have now just topped the £250,000 mark… Over Quarter Of A Million Now Raised!!!

Would you like to be on the committee of the Cystinosis Foundation UK? Our charity is over 10 years old and during this time has run with a small committee of trustees who meet around… Foundation Looking For New Trustee