Team Kempy managed to get “spotted” by Radio 5 Live who were reporting from Greenwich, the start location for the London Marathon. They swiftly got rounded up and gave a brief description on Radio 5… “Team Kempy” on Radio 5 Live plug the Cystinosis Foundation UK
The Cystinosis Research Foundation in the USA has successfully raised $1.3 million in a single night! Their annual fundraiser dinner, held at the Balboa Bay Club in Newport Beach, California, had over 300 attendees, including… USA Charity Night raises $1.3m!!
The Cystinosis Foundation UK would like to thank all the players and members of the 118th and 92nd Boys Brigade Old Boys football teams for raising £550 that will help fund Cystinosis research. The teams… Boys Brigade Old Boys Football Fundraiser For Foundation
The Cystinosis Foundation UK is organising a one day conference on Saturday 24th September at the Manchester Conference Centre and you can now register by printing and sending the Registration Form. The conference is being… Register For The UK Conference
Researchers at Sunderland University have recently received an £80,000 grant from the Cystinosis Research Network in the USA to help fund a new 3 year study that will focus on proteomic research (the study of… Sunderland University Receive Funding From USA
On the 9th April 2011 one of the largest ever events in aid of the Cystinosis Foundation UK took place as around 60 walkers took to the streets of Sheffield on a 11 mile journey… The Sheffield Walk Wonder
The Cystinosis Research Foundation are pleased to announce their second Day Of Hope Family Conference in the Balboa Bay Club, Newport Beach, California from Thursday, May 19 until Saturday, May 21, 2011. This conference is… 19th-21st May: Day Of Hope Conference, California
It takes your breathe away…well it certainly did in the case of Darren, the partner of Jessica Kemp whose daughters have Cystinosis. In February, Jessica shaved off all her golden locks after she was sponsored… It Takes Your Breathe Away
A "guess the squares" raffle, run by Elizabeth Forsyth (grandmother of Lena Forsyth who has Cystinosis) was given a boost, when Scotland’s First Minister, Alex Salmond, re-donated a bottle of Scottish Parliament whisky. Read More…… "Cheers" From Scotland’s First Minister
April has been a big month for the Foundation and its supporters. We have had a significant number of big events happening and to quote our treasurer, Gareth Jackson, "The latest total is £227,224.27 and… Fundraising Update And A Word Of Thanks