A big well done to Jessica Kemp who, on realising she could not join the Sheffield Sponsored Walk For Cystinosis, challenged her friends to sponsor her £200 in return for which she would shave off… Short Cut To Success

Drew Axford-Ewing is 9 months old and has Cystinosis. He was diagnosed with Cystinosis on Christmas Eve and his story, and that of his family, was recently featured in the Devonshire press. The full story… Fundraiser For Drew

The Cystinosis Foundation would like to thank Robert and Myra Mellors for raising £500 for the Cystinosis Foundation UK. Myra Mellors supported the Foundation by running in the Bupa Great Winter Run at Holyrood Park… Fun Runner Raises £500

Raptor Pharmaceuticals in the USA have completed the recruitment of 30 patients for phase three trials of their new slow release