Huge congratulations to Scott Clarkson, Jonathan Garrett and Richard Ayre (a.k.a. the Hairy Hikers – pictured) who completed the Lyke Wake Walk on 19 May 2012, raising over £2,000 for Cystinosis Foundation UK in the…
The Foundation is delighted to announce that it achieved its goal of raising £300,000. Since the original target of £100,000 was set in 2004, eventually increasing to £300,000 in 2010, a grand total of £312,261…
Well done to CFUK Trustee Neil Hutchison and his wife Alex, who raised £1,088 (and 15 pence!) through a quiz night and raffle hosted in their local bowling club in West Linton. The quiz, universally…
Sisters Emily,3, and Poppy-Mae,23 months, have recently raised awareness for cystinosis by appearing in both the Sun and Daily Mail newspapers. Mum, Jessica Kemp, 25, was eight months pregnant with Poppy-Mae when Emily was finally…