The Cystinosis Foundation UK has a small dedicated team of trustees that run its operation, these trustees are all volunteers and carry out their duties in their own time. To keep the charity moving forward… Become a Trustee

Cystinosis Research Network is looking for art contributions from cystinosis patients, to be part of a travelling art exhibition. This includes all types of creative work such as photography, poetry, music, painting and sculpture. You… Artwork Needed for Art Exhibition

We need your feedback! A new model of care for cystinosis has been proposed as part of the national designation application to NHS England. Your feedback is vital, the model of care needs to suit… National Designation Survey – Your Chance to Have a Say

It’s that time of year again, flu season! The NHS recommends that people with long term health conditions, including cystinosis, have a flu vacinne. Patients who have had a transplant are at increased risk of… Have You Had a Flu Vaccine?

We have recently joined a website called Giveacar, which collects old cars, scraps or auctions them, then donates the proceeds to charity. Do you own a vehicle that you want to sell or get rid… Old Car? Scrap It for Cystinosis

Those of you who attended the conference in Manchester might have seen the Trustees sporting these fetching charity wristbands and wondered – where can I get hold of these? We are pleased to announce that… Charity Wristbands for Sale