On June 9th Chairman, Roy Forsyth, his wife Vicky and Secretary, John Terry, visited the School of Pharmacy and Life Sciences at the Robert Gordon University (RGU). Our host was Professor Don Cairns who moved…
The August Newsletter Is Now Available The latest CLIMB newsletter has been released: Read the August Newsletter. Who are CLIMB? CLIMB (Children Living with Inherited Metabolic Disorders) are a national organisation working on behalf of…
The Cystinosis Research Foundation have announced changes to their Scientific Review Board –
The Cystinosis Foundation UK are pleased to announce the sale of a series of luxury hand made cards, available for purchase on on-line. The cards have been prepared by hand by Nikki Woods and are…
A big well done and thank you are due to the children and teachers of Broomgrove Infants in Wivenhoe, Essex who raised over £100 for the Cystinosis Foundation UK during May this year. The children…
Please support Tom Naysmith and John Eldridge as they tackle the 108 miles and 5000 meters of ascent (that’s 3 times Ben Nevis) on the famed La Marmotte Sportive in France on July 3rd. This…
Our thanks go to Colin Buist for allowing us to publish his account of his epic Speyside Way adventure with friends and family in April of this year. And thank you to all those involved…
The Cystinosis Research Network (USA) are pleased to announce they have awarded funding for a three year Cystinosis research fellowship. Read More…
The May Newsletter Is Now Available The latest CLIMB newsletter has been released: Read the May Newsletter. Who are CLIMB? CLIMB (Children Living with Inherited Metabolic Disorders) are a national organisation working on behalf of…
Awareness of Cystinosis and the Cystinosis Foundation UK is receiving a boost after Tony and Janet Sladdin agreed to sponsor Mintlaw Primary School’s football team strip. Tony and Janet are grandparents of Lena Forsyth, who…