Raptor Pharmaceuticals in the USA have completed the recruitment of 30 patients for phase three trials of their new slow release

I’ve been involved with the Foundation now for around 6 years. Over those years I’ve had the opportunity to meet with many inspiring individuals, hear from people training and then succeeding in a particular challenge… Review of 2010

We all appreciate running a marathon requires dedication and training. However, it’s easy to forget just quite what that means in practice – how far ahead training must begin and how much must be done,… Winter Training

We are very pleased to announce that Martin Kemp has managed to secure a place in the 2011 London Marathon. Martin has already started his training, which has included participating in several local runs, but… London Marathon Place Confirmed

It is with great pleasure that I can report that our research funds appeal has now raised over £200,000 since it was launched – in fact precisely £206,605.66. The appeal initially had an optimistic hope… £200,000 Target Reached!

The Cystinosis Foundation UK chairperson, Roy Forsyth, reports on a recent visit to Sunderland University to present new equipment funded by a donation by the UK Foundation: "As part of our ongoing work with Sunderland… Funded Equipment For Sunderland

The Cystinosis Research Foundation in collaboration with the Cystinosis Foundation UK and other key Cystinosis leaders and organisations around the world have launched a patient-based international Cystinosis registry. The Cure Cystinosis International Registry (www.cystinosisregistry.org) will… Cure Cystinosis International Registry