Lee’s London Success!
A huge “well done” is certainly due for Lee Vallett, who not only successfully completed the London Marathon last month, but also beat his target time and raised nearly £1,000 for the Cystinosis Foundation UK…
Gel Formulations For Treatment Of The Ophthalmic Complications In Cystinosis
We are very grateful to Dr Graeme Kay, Lecturer in Pharmaceutical Science at The Robert Gordon University, Aberdeen, for allowing us to publish this research article into ‘Gel Formulations For Treatment Of The Ophthalmic Complications…
Sixty Five Mile Walk Success
Congratulations and thank you to the 10 strong team of walkers who successfully completed their 65 mile walk in Speyside, North-East Scotland, raising nearly £3,000 for the Cystinosis Foundation UK in the process. The group…
Family’s Fundraising Total Over £11,000!
CHARITY NIGHT IN MEMORY OF JACK CHAPMAN On Saturday 7th November 2009 a charity night was held at The Docklands Sailing Club in London to raise money for the Cystinosis Foundation UK. The event was…
Well Done Runner Jo
Well done to Jo Grant, who not only succesfully ran 8.2 miles on the 11th of April in the Kingston Breakfast Run, but also managed to reach her target of raising £350 for the Cystinosis…
£75,916 Raised
As of April 2006, we have now raised £75,916 towards our £100,000 appeal target – in other words over three quarters of the way there. This is down to the hard work of several individuals…
Young Motorcycle Racer Promotes Foundation
Team Twister is delighted to announce that throughout 2010, Tim Hastings will be promoting the Cystinosis Foundation UK. One of Tim’s long term supporters and sponsors is Tony Sladdin, whose eldest granddaughter Lena has the…
Twice-Daily Cysteamine Trials Update
The Cystinosis Research Foundation has made available the publication of "Long-Term Treatment of Cystinosis in Children with Twice-Daily Cysteamine" by a group of leading researchers, including Dr Ranjan Dohil. This publication details the results of…
2010 International Conference (Update September 13th)
To all those going to the conference, please note the shuttle bus times have changed – please contact Quick Line to confirm the time of your shuttle bus. If you are unfamiliar with Venice Aiport,…
April 2010 Newsletter released
Issue 18 (April 2010) of our newsletter has recently been published and if you are a member of the Foundation you should receive your copy soon, or you can download direct from the site (requires…